To all the people who had to surrender the dream space they held for pregnancy and bringing into the world healthy babies, healthy children.

To all the people who believed for decades that they would give birth and regenerate the DNA of their ancestors, who met finality instead.

To all…

The past year of pandemic-isolation has also been populated with online communities sharing information and experiences, discovering solidarity, flexing advocacy. Specifically, for me, these communities are The Endo Community and the Childless Not-By-Choice Community. …

At an annual dermatology visit, the Dermatologist asked me about the six visible scars on my ribs and chest. I told her that I have Endometriosis, and it caused my lung to collapse 3 times in one year, so I needed to have two lung surgeries, and many scars.

Like…

People travel from all over the world to see this guy. His name has appeared in more conversations, articles and social media comments than any other name I’ve read in the past two years. So when it was my turn to see him, I wanted to take our photo together.

Dr. Ken Sinervo, and me — his patient

Tears come when they come. In an entire year of health crisis, there was just two times I cried to another human over my health concerns — once upon being dropped off at the ER amidst CoVid, leaving my husband in the car behind me while my lung was collapsing…

“Be Your Own Advocate,” top advice given to someone going through a medical crisis or seeking medical care. It’s true on every day of the calendar, while approaching every obstacle, addressing every need on a medical journey. Trite and true.

It doesn’t matter how tired you are, you still have…

It’s been several months since I spoke to my father on the phone. I did go through 15 months of life-threatening disease, a cross-country medical move, 2 lung surgeries during a lung-eating pandemic, and to top it off — infertility and the grief that comes with that. Some would think that a father’s love would be of use during this time, that occasional friendly phone call or cheerful note. However dads out there do these things with their daughters. I don’t know.

When you are suffering to the depths of physical, mental and emotional severity as I have been, you need others to carry a light some days. The suffering doesn’t end when you leave the hospital.

Three years ago I lost a favorite cousin to addiction and depression. I know what…

‘Being happy for what you have’ is not always a choice. Let’s get that straight. …

This year I had a dream that someone I loved my whole life was angry at me because I was sick. That is a sincere reflection of what 2020 feels like when I think of many relationships and their silence or absence during a dark time.

2020 was the year…

I moved across the country to live in a city that had the appropriate medical care for Diaphragmatic Endometriosis. Not only was Atlanta the place with the best trained and experienced surgeons for my recurring collapsed lung, but residents of the state are eligible to receive financial assistance.

Before Atlanta…

Lindsay Bane

Endo Survivor, Bonus Mom, Writer and Filmmaker

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